Fabienne Bourgeois

Fabienne Bourgeois is a prominent researcher in pediatric health informatics and patient engagement, affiliated with Harvard Medical School and the Department of Population Medicine at Harvard Pilgrim Health Care Institute and Boston Children's Hospital. Her work bridges clinical care, health policy, and technology to improve diagnostic safety and equity in pediatric and adolescent populations.

She earned her undergraduate and medical degrees from Yale University and completed her graduate training in public health at the Harvard T.H. Chan School of Public Health. Her clinical training includes residency at the Boston Combined Residency Program and a fellowship in Pediatric Health Services Research at Harvard.

Her research focuses on leveraging digital tools—such as patient portals, telehealth, and the OurDX pre-visit engagement platform—to enhance patient and family involvement in the diagnostic process, particularly for vulnerable populations. She investigates issues of privacy, confidentiality, and equitable access in adolescent health, with a strong emphasis on how race, language, and socioeconomic status affect digital health outcomes.

Her recent publications highlight a sustained focus on patient-reported diagnostic errors, family engagement through open notes, adolescent autonomy in online health systems, and reducing digital divides via tablet loaner programs. The work spans implementation science, ethical considerations, and policy implications of the 21st Century Cures Act.

• Active contributor to OpenNotes initiative in pediatrics
• Leader in developing patient-centered frameworks for diagnostic safety
• Focus on health equity in digital health tool deployment

Dr. Bourgeois has not received any explicitly mentioned scientific awards in the provided text. She mentors trainees and leads multidisciplinary research teams focused on health services and informatics innovation. Her work is supported by institutional and federal research funding, though specific grants are not listed. She collaborates across Boston Children’s Hospital, Harvard Medical School, and partner healthcare systems to co-design and evaluate interventions that empower patients and families.

She leads or contributes to research units focused on pediatric informatics, diagnostic safety, and health equity. Her team integrates qualitative, quantitative, and mixed-methods approaches to study real-world health IT implementation and its impact on care quality and patient experience.