معرفی
Claudia Egher is a Researcher at the Copernicus Institute of Sustainable Development, part of the Faculty of Geosciences, Utrecht University, Netherlands. Her work synthesizes science and technology studies (STS), medical sociology, innovation studies, and philosophy to analyze the social, cultural, and ethical dimensions of digital healthcare innovations and patient engagement in pharmaceutical development. She focuses on participatory practices, affective labor in expertise, and value reconfiguration in research infrastructures for rare cancers.
- Primary Affiliation: Utrecht University
- Sub-Units: Faculty of Geosciences, Copernicus Institute, Innovation Studies
Her research explores:
- Patient engagement in drug development through dialogical problematization and standardization
- Affective labor in expert practices
- Moral labor and value negotiation in digital health infrastructures
- Knowledge representation in participatory healthcare
- Public participation dynamics in contemporary societies
- Digital biocommunities for mental health support
Recent publications analyze co-creation of data infrastructures for rare diseases, ethics of AI in clinical settings, and hybrid expertise in online mental health forums. She contributes to journals like Science and Technology Studies, Science as Culture, and Health Expectations.
