Carine van Capelle

Carine van Capelle is a Researcher in the Department of Pediatrics at Erasmus MC, Rotterdam, specializing in pediatric metabolic disorders and palliative care. Her work bridges clinical research and patient-centered care delivery for children with complex conditions.

Her research portfolio centers on:

• Glycogen Storage Disease Type II (Pompe disease) and enzyme replacement therapy outcomes
• Cardiac function assessment in metabolic disorders
• Family-centered care models in pediatric palliative settings
• Systematic reviews of multi-organ system abnormalities
• Advance care planning education for healthcare professionals
• Cost-effective interventions for rare pediatric conditions

Analysis of her recent publications reveals consistent focus on translating clinical findings into practical care frameworks. Her work on Pompe disease tracks longitudinal cardiac outcomes, while palliative care research develops scalable team-based learning programs. The systematic review on Fontan circulation complications demonstrates methodological rigor in identifying extra-cardiac manifestations, reflecting her commitment to comprehensive pediatric care beyond traditional organ boundaries.