معرفی
Ghislaine van Thiel is an Associate Professor at the University Medical Center Utrecht (UMC Utrecht), affiliated with the interdisciplinary research department of Bioethics & Health Humanities. Her work spans bioethics, health law, patient involvement, and governance of health research.
Key research themes include:
- Ethics of precision medicine and off-label treatments in rare diseases
- Challenges in decentralized clinical trials
- Ownership and governance of biological samples
- Responsibility frameworks in AI-driven health research
- Pharmaceutical reimbursement policies
- Ethical dimensions of psychiatric euthanasia
She actively contributes to public discourse through academic publications in journals like Orphanet Journal of Rare Diseases, BMC Medical Ethics, and Frontiers in Psychiatry. Van Thiel participates in national oversight roles, including:
- Board member - Dutch Society of Cardiology
- Reviewer - Central Committee on Research Involving Human Subjects (CCMO)
- Advisor - Prinses Maxima Center for Pediatric Oncology
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