معرفی
Bartha Knoppers, PhD, is a Professor in the Department of Human Genetics at McGill University’s Faculty of Medicine and Health Sciences, and an Investigator at the Research Institute of the McGill University Health Centre (RI-MUHC). She leads the Centre of Genomics and Policy, focusing on ethico-legal issues in genomic medicine, biomedical ethics, and privacy. Her work explores pediatric applications, data governance, biobanking, and stem cell therapies within a comparative international framework. She advocates for policies ensuring equitable access to scientific advancements, emphasizing human rights and global health equity.
Research Interests:
- Genomic Medicine Ethics
- Data Privacy & Sharing
- Biomedical Policy
- Pediatric Genetic Research
- Health Law & Human Rights
- Global Governance of Science
Her recent publications address challenges in genomic data sharing under GDPR, ethical frameworks for precision medicine, and pandemic-era consent models. Awards and grants are not explicitly listed in the provided text, but her leadership roles reflect significant contributions to the field. She collaborates internationally on initiatives like the Human Cell Atlas, emphasizing global ethical commitments.
