Ashleen Crowe

Ashleen Crowe is a Research Fellow at Queen's University Belfast's School of Nursing and Midwifery. She holds an ORCID ID (0000-0002-4852-4423) and can be contacted at a.crowe@qub.ac.uk. Her research focuses on rare diseases, end-of-life care, decision-making in healthcare contexts, and healthcare communication. She completed her Ph.D. in 2023 under the supervision of Dr. A.J. McKnight and Dr. G. Duffy.

Education:

• Doctor of Philosophy (PhD), Queen's University Belfast (2023)

Research Interests:

• End-of-life decision-making for pediatric patients
• Compassionate communities and palliative care policy
• Rare disease burden analysis
• Healthcare communication strategies

Key Research Trends: Her recent work emphasizes collaborative decision-making processes in end-of-life care for children and the development of compassionate community frameworks to support families during bereavement. She also explores epidemiological patterns of rare diseases using large-scale datasets like the UK Biobank.

Awards:

• Finalist, Vice Chancellor's Research Culture Prize 2020
• MHLS Research Category - Postdoctoral Award Nomination (2023)
• QUB Agility Fund Strand 4 (2025)
• Shortlisted for QUB Staff Excellence Awards: Team of the Year 2019

Grants & Activities:

• Recipient of QUB Agility Fund for research impact initiatives
• Presenter at European Meeting on Psychosocial Aspects of Genetics (2018)
• Co-author of All Ireland Institute Hospice position paper on compassionate communities
• Principal investigator for studies on pediatric end-of-life care decision-making

Labs & Collaborations: Collaborates with the All Ireland Institute of Hospice and Palliative Care and participates in multidisciplinary teams addressing rare disease communication and end-of-life care policy.