معرفی
Anne T Berg serves as an Adjunct Lecturer in the Department of Neurology at Northwestern University's Feinberg School of Medicine, specializing in the Epilepsy/Clinical Neurophysiology division. With over three decades of continuous membership in the American Epilepsy Society since 1987, she maintains a prominent position in the epilepsy research community.
- PhD from Yale University (1986)
Dr. Berg specializes in developmental epilepsies and leads parent-driven outcomes initiatives with research focusing on natural history and trial metrics. Her work spans multiple areas including Autism Spectrum Disorders, Brain and Nervous System research, Clinical Trial Methodology, Disability Epidemiology, Healthcare Quality, Health Services Research, and Pediatric Neurology. She has developed significant expertise in outcome measures and psychometrics as applied to epilepsy research.
Her research portfolio demonstrates a strong emphasis on patient-centered outcomes, particularly caregiver perspectives and quality of life metrics in rare genetic epilepsies including KCNQ2 and SCN2A-related disorders. Recent publications highlight her leadership in clinical trial readiness studies and the development of meaningful outcome measures for therapeutic interventions.
- Ambassador for Epilepsy award, International League Against Epilepsy (2009)
- Research Recognition Award for Clinical Research, American Epilepsy Society (2008)
- Jacob Javitz Neuroscience Investigator Award, NINDS (2007)
Dr. Berg maintains extensive professional leadership roles, including current Scientific Advisory Board positions with European STXBP1 Consortium (2025-Present) and DEE-P Connections (2020-2025). She has chaired significant initiatives including the International League Against Epilepsy Classification Commission (2006-2009) and the Diagnostic Manual Task Force (2009-2011). Her editorial service includes membership on the Neurology journal editorial board since 2012. She is affiliated with the Northwestern University Clinical and Translational Sciences Institute (NUCATS) and the Stanley Manne Children's Research Institute.
Her leadership extends to hosting the CURE Days of Science and organizing symposia on Precision Medicine in Epilepsy. She has served on the NINDS/NIH Common Data Elements project and Epilepsy Research Benchmarks committee, demonstrating her commitment to standardizing epilepsy research methodology.
